Under Our Skin: The Untold Story of Lyme Disease
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By Dr. Mercola
Unrelenting pain. Headaches, muscle aches, swollen joints, rashes. Loss of coordination and muscle spasms. Intermittent paralysis. Cycles of disabling symptoms that persist for years, causing ceaseless suffering and frustration for patients and their families.
This is the picture of chronic Lyme disease. And yet, many physicians tell their patients there is "no such thing," referring them to psychiatrists, misdiagnosing them, or even accusing them of fabricating an illness or simply seeking attention.
"Under Our Skin," a critically acclaimed documentary and Oscar semi-finalist exposes the hidden story of Lyme disease, one of the most serious and controversial epidemics of our time. Slant Magazine calls it "head-spinning...riveting...a rigorously researched and highly thorough piece of investigative reporting."
Each year, thousands go undiagnosed or misdiagnosed, often told their symptoms are all in their heads. "Under Our Skin" brings into focus a troubling picture of a health care system that is far too willing to put profits ahead of patients. The Chicago Daily Herald calls it "a ripping indictment of the medical establishment's failure to uphold its oath."
By Dr. Mercola
Unrelenting pain. Headaches, muscle aches, swollen joints, rashes. Loss of coordination and muscle spasms. Intermittent paralysis. Cycles of disabling symptoms that persist for years, causing ceaseless suffering and frustration for patients and their families.This is the picture of chronic Lyme disease. And yet, many physicians tell their patients there is "no such thing," referring them to psychiatrists, misdiagnosing them, or even accusing them of fabricating an illness or simply seeking attention."Under Our Skin," a critically acclaimed documentary and Oscar semi-finalist exposes the hidden story of Lyme disease, one of the most serious and controversial epidemics of our time. Slant Magazine calls it "head-spinning...riveting...a rigorously researched and highly thorough piece of investigative reporting."Each year, thousands go undiagnosed or misdiagnosed, often told their symptoms are all in their heads. "Under Our Skin" brings into focus a troubling picture of a health care system that is far too willing to put profits ahead of patients. The Chicago Daily Herald calls it "a ripping indictment of the medical establishment's failure to uphold its oath."
The History and Discovery of Lyme Disease
Lyme disease rates are escalating at breakneck speed, among humans as well as animals. Today, Lyme disease is the most common vector borne disease in the U.S., far more common and dangerous to the average American than West Nile virus. In fact, there were almost 40,000 reported cases of Lyme in 2009,1which by all accounts is a gross underestimate.
The CDC estimates the real number of cases may be up to 12 times higher, suggesting as high as 480,000, making Lyme far more prevalent than AIDS. The number of Lyme cases reported annually has increased nearly 25-fold since national surveillance began in 1982.2
Lyme disease was named after the East Coast town of Lyme, Connecticut, where the disease was first identified in 1975.3 The disease was first referred to as "Lyme arthritis" due to the presentation of atypical arthritic symptoms. By 1977, the black-legged tick (Ixodes scapularis, also known as the deer tick) was linked to transmission of the disease.
Then in 1982, Willy Burgdorfer, PhD, discovered the bacterium responsible for the infection: Borrelia burgdorferi. The bacteria are released into your blood from the infected tick, while the tick is drinking your blood.
We now know there are five subspecies of Borrelia burgdorferi, more than 100 strains in the U.S. and 300 worldwide, many of which have developed resistance to our various antibiotics. Although many still attribute transmission exclusively to ticks, according to Dr. Deitrich Klinghardt, one of the leading authorities on Lyme disease, the bacteria can also be spread by other insects, including mosquitoes, spiders, fleas, and mites. This may be the reason so few Lyme sufferers recall being bitten by a tick. There is also increasing evidence that Lyme disease may be transmitted sexually and congenitally.
Borrelia burgdorferi is a spirochete,4 a cousin to the spirochete bacterium that causes syphilis. In fact, they look almost identical under a microscope. B. burgdorferi's corkscrew-shaped form allows it to burrow into and hide in a variety of your body's tissues, which is why it causes such wide-ranging multisystem involvement.
Lyme disease rates are escalating at breakneck speed, among humans as well as animals. Today, Lyme disease is the most common vector borne disease in the U.S., far more common and dangerous to the average American than West Nile virus. In fact, there were almost 40,000 reported cases of Lyme in 2009,1which by all accounts is a gross underestimate.The CDC estimates the real number of cases may be up to 12 times higher, suggesting as high as 480,000, making Lyme far more prevalent than AIDS. The number of Lyme cases reported annually has increased nearly 25-fold since national surveillance began in 1982.2Lyme disease was named after the East Coast town of Lyme, Connecticut, where the disease was first identified in 1975.3 The disease was first referred to as "Lyme arthritis" due to the presentation of atypical arthritic symptoms. By 1977, the black-legged tick (Ixodes scapularis, also known as the deer tick) was linked to transmission of the disease.Then in 1982, Willy Burgdorfer, PhD, discovered the bacterium responsible for the infection: Borrelia burgdorferi. The bacteria are released into your blood from the infected tick, while the tick is drinking your blood.We now know there are five subspecies of Borrelia burgdorferi, more than 100 strains in the U.S. and 300 worldwide, many of which have developed resistance to our various antibiotics. Although many still attribute transmission exclusively to ticks, according to Dr. Deitrich Klinghardt, one of the leading authorities on Lyme disease, the bacteria can also be spread by other insects, including mosquitoes, spiders, fleas, and mites. This may be the reason so few Lyme sufferers recall being bitten by a tick. There is also increasing evidence that Lyme disease may be transmitted sexually and congenitally.Borrelia burgdorferi is a spirochete,4 a cousin to the spirochete bacterium that causes syphilis. In fact, they look almost identical under a microscope. B. burgdorferi's corkscrew-shaped form allows it to burrow into and hide in a variety of your body's tissues, which is why it causes such wide-ranging multisystem involvement.
The Invisible Illness
Many Lyme patients who battle this disease on a daily basis appear healthy, which is why Lyme disease has been called "the invisible illness." They often "look good," and their blood work appears normal, but their internal experience is a far different story. Patients struggling with Lyme disease usually become adept at hiding their pain from others as a way to cope and restore some degree of normalcy to their lives.
Part of the problem with diagnosing and treating Lyme disease is that it is so easy to misdiagnose.
Lyme disease is called "the great imitator,"5 mimicking other disorders such as multiple sclerosis (MS), arthritis, chronic fatigue syndrome, fibromyalgia, ALS, ADHD and Alzheimer's disease. In some cases, Lyme patients can even develop paralysis or slip into a coma. The only distinctive hallmark unique to Lyme disease is the "bulls eye" rash, but this is absent in nearly half of those infected. Laboratory tests are notoriously unreliable.
Fewer than half of Lyme patients recall a tick bite. In some studies, this number is as low as 15 percent. So, if you don't recall seeing a tick on your body, that doesn't rule out the possibility of Lyme disease. According to TBDA3:
"Although the bulls eye red rash is considered the classic sign to look for, it is not even the most common dermatologic manifestation of early Lyme infection. Atypical forms of this rash are seen far more commonly. It is important to know that the Erythema Migrans rash is a clear, unequivocal sign of Lyme disease..."
Besides the rash, some of the first symptoms of Lyme disease may include a flu-like condition with fever, chills, headache, stiff neck, achiness and fatigue. For a complete list of symptoms, refer to the Tick-Borne Disease Alliance6 (TBDA), but some of the more frequent symptoms include the following2:
- Muscle and joint pain
- Neurological problems
- Heart involvement
- Vision and hearing problems
- Migraines
Many Lyme patients who battle this disease on a daily basis appear healthy, which is why Lyme disease has been called "the invisible illness." They often "look good," and their blood work appears normal, but their internal experience is a far different story. Patients struggling with Lyme disease usually become adept at hiding their pain from others as a way to cope and restore some degree of normalcy to their lives.Part of the problem with diagnosing and treating Lyme disease is that it is so easy to misdiagnose.Lyme disease is called "the great imitator,"5 mimicking other disorders such as multiple sclerosis (MS), arthritis, chronic fatigue syndrome, fibromyalgia, ALS, ADHD and Alzheimer's disease. In some cases, Lyme patients can even develop paralysis or slip into a coma. The only distinctive hallmark unique to Lyme disease is the "bulls eye" rash, but this is absent in nearly half of those infected. Laboratory tests are notoriously unreliable.Fewer than half of Lyme patients recall a tick bite. In some studies, this number is as low as 15 percent. So, if you don't recall seeing a tick on your body, that doesn't rule out the possibility of Lyme disease. According to TBDA3:"Although the bulls eye red rash is considered the classic sign to look for, it is not even the most common dermatologic manifestation of early Lyme infection. Atypical forms of this rash are seen far more commonly. It is important to know that the Erythema Migrans rash is a clear, unequivocal sign of Lyme disease..."Besides the rash, some of the first symptoms of Lyme disease may include a flu-like condition with fever, chills, headache, stiff neck, achiness and fatigue. For a complete list of symptoms, refer to the Tick-Borne Disease Alliance6 (TBDA), but some of the more frequent symptoms include the following2:
- Muscle and joint pain
- Neurological problems
- Heart involvement
- Vision and hearing problems
- Migraines
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